Personal Stories

You are not alone. Thousands of Canadians are living with, or supporting someone affected, hydrocephalus or spina bifida. Sharing our experiences brings us closer together, provides valuable insights and inspires us with the courage needed to be our best.

If you would like to share your personal story to help someone feel less alone, we would love to help you. Contact us at to find out how.

Below are links to stories shared by those in our community: