Welcome to our new Bilingual Webinar Series in Partnership with
Association de spina-bifida et d’hydrocéphalie du Québec


Welcome to the RISE UP Education Series hosted by Hydrocephalus Canada and Association de spina-bifida et d’hydrocéphalie du Québec. This webinar series is a collaboration that aims to overcome the language barrier of our two communities, French & English Canadians, to access information. Together, they can benefit from the expertise of health specialists in the care of people with spina bifida and hydrocephalus.

*If you miss a webinar the recording will be available here or on our YouTube Channel at https://www.youtube.com/channel/UC3psi9zf8KapVlgJ9p0f1EQ


“Hydrocephalus in All Its Facets: One webinar, two presentations & website launch”
October 25 at 5 p.m. (Montreal)

Join Hydrocephalus Canada & Association de spina-bifida et d’hydrocéphalie du Québec for this very special event on World Spina Bifida & Hydrocephalus Day, Oct. 25 at 5pm (Montreal). A webinar with two presentations & website launch. Dr. Alfonso Fasano will present, “Normal Pressure Hydrocephalus: A neurologist’s perspective”. Dr. Vincent Joris will discuss, “Hydrocephalus: Diving into the heart of the brain”. The event will also feature the exciting launch of a French language website devoted to providing hydrocephalus information and support. 

Watch the Launch of French Hydrocephalus Website 

Watch “Normal Pressure Hydrocephalus: a neurologist’s perspective” 

Watch “Hydrocephalus: diving into the heart of the brain” 



“Pregnancy in people with spina bifida, introduction of a new guideline.”

Dr. Anne Berndl, from Sunnybrook Research Institute discusses health issues for girls and women with spina bifida & hydrocephalus focusing on pregnancy and childbirth.  

Thank you to everyone who attended. If you were not able to attend, you can watch the video of the webinar on our Youtube channel. Just click the button below:

Watch “PREGNANCY IN SPINA BIFIDA: Introduction of a New Guideline”     

If you would like a copy of Dr. Berndl’s presentation slides, please send an email to info@hydrocephalus.ca and we will send them to you. 


“Understand the Bladder to Live Your Best Life”

Dr. Julie Franc-Guimond is passionate about the bladder; listening to her will make you want to become a urologist. During this webinar, she will help you better understand neurogenic bladder-related abnormalities and treatment options, learn more about surgeries to treat neurogenic bladder, and become familiar with the short, medium and long term issues of neurogenic bladder. Dr. Julie Franc-Guimond has been practicing pediatric urology at CHU Sainte-Justine since 2004.

Thank you to everyone who attended this enlightening webinar. If you were unable to attend, the presentation is available on our YouTube channel. 



“Nutritional Management of Neurogenic Bowel and Bladder”
June 1, 2021 at 5 p.m. EST.

In this webinar, Jackie will explain the role nutrition plays in managing neurogenic bowel and bladder. She will then delve deeper into the different types of fibre and the roles they play in the different types of neurogenic bowel and share practical strategies for implementing them into your life.

Jackie Silver, MHSC, RD is a Registered Dietitian in Toronto with a virtual private practice and consulting business, Jackie Silver Nutrition, that focuses on nutrition for adults and children with physical or intellectual disabilities. She graduated from Ryerson University with a Masters of Health Science in Nutrition Communication and also has further training in mindful eating which she incorporates in her client work. Jackie is passionate about empowering people of all abilities to live healthier lifestyles. In her spare time, she enjoys cooking, baking, meditating, journaling, being outdoors, traveling, and spending time with family and friends.

You can send your questions for Jackie, in advance, to us at info@spina.qc.ca and info@hydrocephalus.ca

This webinar will be presented in English with simultaneous translation to French.


“Becoming Wonder Wheel Woman: What I Learned About Life as a Mother After Acquiring a Spinal Cord Injury”
September 15, 2021

Marjorie Aunos, Ph.D. is an internationally renowned researcher, adjunct professor, clinical psychologist and inspirational speaker from Montreal, Canada. She is the Chair of the Parenting and Parents with Intellectual and Developmental Disabilities Special Interest Group (SIRG) of the International Association on the Scientific Study on Intellectual and Developmental Disabilities since 2016. She has presented in numerous international conferences, has published in various peer-reviewed journals and is lead or co-author of several book chapters on this topic. But most importantly, while at the peak of her career in Parenting and Disability, Marjorie, a single mother by choice to a 16 months old boy, became differently abled following an acquired spinal cord injury.

Her goal is to highlight positive images of parenting with a disability and she stands for the notions of positive parenting, character strengths and resiliency in families headed by parents with different abilities. What Marjorie wants all of us to understand is that “Accessibility and inclusion are the tools to make people like me feel like they belong.”

In this webinar you will:

  • hear about how becoming a person with a disability altered her perspective on life and working with parents with an intellectual and development disability
  • learn about positive psychology and character strengths and how it impacted her ability to notice her resilience,
  • see how we can all change the discourse about disability and how it is portrayed in the media.