Hydrocephalus Canada is your best source for information about any aspect of spina bifida and/or hydrocephalus. Researched, quality information is provided on education, disability related issues and all medical topics such as bowel management, incontinence and tethered cord.
Complimentary books, publications and other materials – for Adults with hydrocephalus and/or spina bifida receive to help manage daily living.
Educator’s Guides, Parent Handbooks and other helpful resources – for Parents of children with the conditions to help them understand and explain to their children, families and others.
Age-appropriate books – for children and youth through our Kidz & Youth Book Club that teach them about their condition and its effects in a way they can understand.
“STAYING CONNECTED” – e-newsletter keep you informed of the latest developments, and feature motivational stories about individuals living with hydrocephalus and/or spina bifida.
“A GUIDE TO HYDROCEPHALUS” – an informative resource for anyone whose life is affected by this condition and their caregivers and health providers.
The most recent books, articles, CDs, DVDs and videos – In our free lending library.
This Website and Social Media – Online information, updates and peer support are available through this website, as well as our Facebook page, Twitter feed and Instagram. We encourage you to take the opportunity to connect with other adults, parents or caregivers to talk about concerns and share information in a safe, monitored setting.
Information and referral services – to answer your questions and locate community resources via an toll free help line and email, available Monday to Friday, 800-387-1575, 9:00am – 4:30pm EST
Public education programs and healthcare community awareness – about the impact of living with hydrocephalus and related neurological conditions, NTD prevention through folic acid use, and diagnosis and treatment of Normal Pressure Hydrocephalus (NPH)