Hydrocephalus Canada supports research that will improve the quality of life for all individuals with hydrocephalus and/or spina bifida and their families. We work in partnership with hospitals, rehabilitation centres, universities and other research facilities by:

  • participating in focus groups,
  • distributing information about research projects through our newsletters,
  • including information about research projects on ourĀ  websites,
  • endorsing research projects to possible research participants,
  • advocating for more government funding for research,
  • providing letters of support to other funders.

Hydrocephalus Canada Research Priorities

Hydrocephalus Canada chooses to play a role in facilitating research through a stronger presence in the research community and by influencing the creation of a research agenda (international and national) through increased collaboration with various stakeholders.

The following areas have been identified as important research priorities:

  • better shunts
  • better alternatives to shunts
  • better/faster diagnosis of normal pressure hydrocephalus
  • better hydrocephalus management – better testing of shunt function/malfunction
  • causes of congenital hydrocephalus
  • long term effects of hydrocephalus on social skills in adults
  • the management of bladder and bowel incontinence
  • the social isolation of young persons with spina bifida
  • better infection management
  • the genetics of mothers with spina bifida