Who We Are
After a long and successful history, the Spina Bifida and Hydrocephalus Association of Ontario became Hydrocephalus Canada in November of 2017. We transitioned to an organization with a national mandate and responsibilities to a much larger community.
Hydrocephalus Canada is your trusted source for compassionate, progressive and innovative solutions that drive efforts to increase awareness. We support four areas of influence: awareness, education, support and research. We develop education resources and support tools for individuals living with hydrocephalus or spina bifida, caregivers and healthcare professionals. We create solutions that support prevention, early and accurate diagnosis and access to appropriate treatment, advancement of new treatments and optimal outcomes.
Hydrocephalus Canada is the voice of Canadians living with hydrocephalus and/or spina bifida. We empower those impacted by these conditions to experience the best life possible. We do this by establishing environments that protect, support and enhance the lives of those living with, or at risk of developing, hydrocephalus and/or spina bifida.
We are leading efforts to:
- increase awareness about hydrocephalus
- create solutions to support prevention, early, accurate diagnosis, access to safe, effective and appropriate treatment, advancement of new treatments, optimal health outcomes
- develop education resources and support tools for indiviuals living with spina bifida and/or hydrocephalus, caregivers and healthcare professionals
- establish supportive communities that encourage inclusive, proactive conversations and activities
- fund meaningful, impactful research
We initiate, facilitate and collaborate on awareness, education, support and research initiatives to help those impacted by hydrocephalus and/or spina bifida thrive.GUIDING STATEMENTS
We believe everyone affected by hydrocephalus and spina bifida:
- has the right to our attention, compassion and commitment
- requires access to timely, safe and effective care
- benefits from, and offers benefit to, collaborative communities
- deserves to be treated with dignity
- has the responsibility to help others understand hydrocephalus and what it means to live with the condition